tuky

Jingthing, on 2011-12-12 06:57:55, said:

The other day here in Korea I stumbled upon your average metrosexaul Korean guy wearing these think black horn rimmed type glasses. WITH NO LENSE...WTF?

He looked stupid enough in them to begin with but to see they didn't have glass in them summed Korea up for me.

Sheryl, on 2011-08-20 07:15:49, said:

Ok, Apparently the The disease name is"membranous glomerulonephrttis"
The medicine they have prescribed is dhasolone5 mg,lasix 40mg, zantac 150mg,apo-k 600mg

This is all greek to me, Sheryl you have seen the report, does any of this make sense to you?
Is it just, for want of a better term, common place? or is this something devastating?

I am now totally confused.

Maybe there is a better place for me to ask my questions? if there is ongoing treatment required, and I am responsible to pay I want to learn more about this in the regard of finding the best place to get her help.
Mods I am sorry if this is out of line, life is more important than mere rules. As you know I used to be a mod, so I understand.

Ok, just to follow up...

I am back at work in another country but my better half is with her now, so my understanding is still not quite clear as I am getting updates in Bahasa Indonesia.

Last Monday (on my way back here) I took her to Mount Elizabeth in Singapore where she has been hospitalised as an outpatient. ($10,000 so far but what is a life worth? ).
All manner of tests have been performed to find out what is wrong with her.
Firstly X-rays were taken, then lab tests on her blood and urine. These urine results came back showing an excess of protein and blood in her sample.
Next they (I think) injected a dye and MRI'd her kidneys, they also took a biopsy which the results are still pending.
So far the diagnosis is, and I am quoting what I have been told in Bahasa Indo that both kidneys are leaking, the drugs she has been taking from Indo doctors is 75% the cause of her problems according the Mount Liz doctor.
She has been having daily "injections" at the hospital, I can only assume this is for flushing the kidneys?
I am told after she is released today the treatments she has received is enough to get her through the next year taking the medicines they will prescribe.

Later today my better half will scan and email the doctors report in English so I will have a better understanding.

My thinking is the $10,000 I am paying now is worth it to get a proper diagnosis from a real hospital and from there we can then work out what to do for further treatment at a perhaps more sustainable cost.

I hope you don't mind if I pick everyones brain a little over the next however long.

She is such a lovely girl and so beautiful. Her family still think all she needs is a witch doctor and were unwilling to do anything more. I have a little trouble understanding that kind of thinking, for me the world is a better place with her in it so I will do all I can to make sure she is. It breaks my heart each day as she calls me, she is crying and can't stop thanking me. I am not in this for the thanks, I am in this because as I say the world is a better place with her in it.  I am really looking forward to seeing her again soon, especially without her swollen legs (Ankle edema, is that correct?)

As an update, seeing as it has been 3 years since I raised this topic.

Dad is still kicking, he still goes to work each day.

He is however getting worse, a short conversation will leave him breathless.
He uses oxygen at home and whilst sleeping, I bought him a portable oxygen generator that has wheels and fits into a check-in luggage sized bag, he uses that when he wants to get around.

He lives in fear of catching a cold, as that would tip him over the edge. Recently he has been hinting quite brazenly that I should visit him so I have made the arrangements and will see him next week as I am sure he would not hint for no reason.

One thing he told me about this problem that really struck me was this...He says most mornings when he wakes up he has forgotten he has IPF and he spends the first minutes thinking he is drowning, he then remembers he is sick and that is why he can't breathe and settles down again. That must be terrible for him.

Anyway, I am glad he is still around and I look forward to seeing him next week. I am sure then I will have a better idea of his condition. I miss the old bugger

Sheryl, on 2011-07-26 02:58:04, said:

Thanks Sheryl, I wish I knew too.
She has been treated (?) at AwalBros Hospital in Batam plus a government run hospital for the poor in South Sumatra. I don't think any diagnosis type work has been done I think they have just put her in a bed and given her drugs, I have no idea what the drugs are either but they do make her swell to twice her size.

The swelling is always from her hips on down, I have seen her ankles the same size as my calf. I guess this has been going for about 12 months.

Poor girl, I just hope to help her as she is miserable and has resigned herself to dying. I will try to get more info.